The Caregiver’s Voice builds a bridge between care partners and people with dementia for our first VOICES with Dementia article. Beginning with a decade-long caregiver’s heartfelt piece written in his father’s voice, future posts will feature people with dementia whose VOICES must be heard.
A morning through my father’s bright blue eyes
Guest article by Vince Zangaro from his father’s point of view.
When I open my eyes in the morning, I feel scared. Where am I? Where have I been? Do I know this place?
I look to the right, and the people there are sleeping soundly. I can’t remember who they are, but I know they love me and I love them; I feel safe.
The light turns on, and I can see a man come up to me and give me a kiss on the forehead; I feel safe.
The man is looking at me with a smile on his face, and today might be okay. He helps me get out of bed and takes me to another room. I feel very nervous, but he sits me down on the stool, and I feel warm and cleansed by a warm mist; I feel safe.
I’m a little cold, and he makes me feel a little warmer with a cloth. He pulls me up and helps me to the restroom. The man keeps cheering me on, so I guess I’m doing okay; I feel safe.
He moves me to another room, and it is bright and birds are chirping; I feel safe.
My stomach is empty, and he helps relieve that feeling; I feel safe.
My vision is a little bit hazed, but I am able to see these blocks of color. He encourages me to interact with them; it feels very familiar; I feel safe.
I hear sounds in the background through the static in my ears; I feel safe.
This goofy man makes me laugh; his voice reminds me of someone I should know; I feel safe.
He rubs my back and holds my hand; I feel safe.
I get fragments of moments, but they’re gone; it is so frustrating. The man kisses me on the cheek and hums to me; I feel safe.
He says it’s only 10 am, and I have worked so hard this morning that I deserve a nap. It all seems overwhelming, and the man helps me to a chair were he sits with me while I close my eyes; I feel safe.
While I drift off to sleep, I pray he is here when I wake up; he helps me feel safe.
I open my eyes in the afternoon; I feel scared. Where am I? Where have I been? Do I know this place?
I look to the right, and a man comes up to me and kisses me on the forehead. I don’t know who he is, but I know he loves me and I love him; I feel safe.
Vince Zangaro is an Atlanta-based musician on a mission. After his father was diagnosed with Alzheimer’s, Zangaro left his corporate job to be a caregiver. In the process he learned lessons that have reignited his love for music allowing his songwriting and storytelling talents to blossom. He is joined by Atlanta’s top musicians.
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Have FUN, enjoy music, and support a great cause by attending the Alzheimer’s Music Fest (AMF) on Sunday, August 23, 2015 in Duluth, Georgia. Inspired by families who live and care for a loved one with Alzheimer’s disease or other forms of dementia, the AMF raises funds for families with limited financial resources and helps increase awareness about dementia. Donations go to Caring Together in Hope, a 501(c)(3) non-profit that supports families who care for their loved one with dementia at home. Click on text link above or on image for more information.
Watch the Better Man Video on You Tube.
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I would give the world if I could have my Mom back…
Vince is an unbelievable son and caregiver.
I became ill after about 8-9 years of caring for my Mom’s and her Alzheimer’s and she was taken by a close family member for what was to be a short time while I got better,financially stable and physically strong.
I was well in about 4 months but they would not give my Mom back; instead it was lawsuits to take her home, money she really did not have & to keep her in a nursing home. It was a living hell for me but much worse for her; she suffered the most in the end.
She was put in a nursing home only to come out again only to keep falling,breaking teeth that were never fixed and I could go on. I was told their doctor said that she did not need the physical warmth and love I was giving to her; that it was absurd.
Instead of hugging and holding hands I was not allowed even to sit on the same couch with her when I visited which was a 750 mile flight. She always knew me and wanted me to take her home.
I wish they could have had Vince’s mindset or at least read what this fellow is all about. This young man is not only a great son but has such insight into this horrible disease.
My mom died shortly after her final fall, 2 long years after she went to live with them. She finally came home, missing teeth.bumps, bruises and a black leg from falls; but she came home in a box on a plane.
To be fair I really think they believed their “tough love” attitude actually was the best thing for her. I do not believe they meant to be cruel to her for one moment or in any way; in spite of everything. They truly believed they were right.
She died 7 years ago. Vince’s story and daily updates have helped me see that the gentle soft love that I tried to give to Mom, the love he shows his Dad, the love one would give a baby is the same love we need to give the victims of this disease.
I will be forever in Vince’s debt for relieving my personal guilt about how I cared for my mom. I felt I completely failed her and did at moments; but I now can see the good I may have done too. Thank you, Vince. You are indeed a Champ !!!
Lori, thank YOU for sharing your bittersweet experience for all to learn from. The risks are high when family members don’t agree.
The sad part is, your experience multiplied by the hundreds of thousands occurs around the world each day.
If we can inspire and even educate just a small part of caregiving families our efforts will not be lost.
Again, thank YOU.
Brenda
P.S. I took the liberty to divide your paragraph into smaller easier-to-read paragraphs so that more people will take time to read your message.
Thank you, Brenda, for tidying up my reply and thank you for all you do; my only regret is having found you a bit to late to help me help my Mom. God bless!!
Lori, among 7 Billion people in our world, I’m happy we connected!
Although, we may not be able to help you as a caregiver, perhaps, you may help others by referring them to TheCaregiversVoice.com and inviting them to Click to SIGN-UP for The Caregiver’s Voice monthly Newsletter – it’s FREE!
That brought tears to my eyes. Thank you for sharing your story and doing the best you could. This is not wasted on me. Thank you!
Great article!! Thanks for posting!