Welcome to The Caregiver’s Voice Media Page
TheCaregiversVoice.com celebrates our 20th anniversary helping caregivers for people with dementia.
While we’ve come a long way as care partners with or caregivers, and carers for people with dementia, the facts remain:
More people are diagnosed with Alzheimer’s and other forms of dementia than ever before.
Worldwide, one person is diagnosed every 3 seconds. In the U.S., one person is diagnosed every minute (65 seconds).
Twenty years ago, only 3.8 million people were living with dementia in the U.S. and 16 million, worldwide. Today, those figures are about 5 million (U.S.) and almost 50 million, globally.
Even though we know more about dementia, we don’t yet have a cure.
The leading causes of dementia are Alzheimer’s, vascular, Lewy bodies, and other causes including Parkinson’s, frontotemporal lobe dementia and more. Over the years, researchers have found about 100 different causes and variants of dementia.
Families arrive at the doorstep of caregiving with very little preparation.
Even though we know more today than two decades ago, many families enter the caregiving freeway during a crisis… and they’re driving blind!
The number of people living with dementia has increased by 300%.
Over the past 20 years, the number of people living with dementia worldwide has grown from an estimated 16 million to 50 million. Shockingly, these figures do not account for the millions who remain undiagnosed.
The stigma of dementia remains.
Imagine going to the doctor’s office and learning that your recent bouts with memory loss and disorientation are due to dementia. Your doctor runs preliminary tests and refers you to a specialist for follow-up tests, which confirm the diagnosis of dementia.
Even though you were functioning fairly normally, from the moment of diagnosis, you become a shunned individual closed off from active participation in society. People move out of your life because they don’t know how to interact with you.
This ignorance must stop!
The Caregiver’s Voice MISSION is to bring hope and strength to caregivers for people with dementia including Alzheimer’s, vascular, Lewy bodies, frontotemporal, Parkinson’s, and other rarer causes through knowledge, support, and humor.
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Brenda Avadian, MA
Caregiver Spokesperson, Advocate, & Author
ABOUT BRENDA AVADIAN, MA
Brenda Avadian, MA, founded The Caregiver’s Voice in 1998 while caring for her father who lived with Alzheimer’s disease. As a prolific author and national spokesperson for family caregivers and professionals, she brings hope and strength to caregivers for people with dementia with knowledge, support, and humor. (Read more about Brenda.)
