Alzheimer’s Association wants to hear from you

This Sunday marks the five-month anniversary of the National Alzheimer’s Project Act (NAPA), signed into law by the President on Jan. 4, 2011. Upon its signing, U.S. Secretary of Health and Human Services (HHS) Kathleen Sebelius stated that NAPA calls for an “aggressive and coordinated national strategy” to confront the rapidly escalating Alzheimer’s crisis.

Now is the time for HHS to decide what will be in the National Alzheimer’s Plan and we want to make sure your voice is heard.

The Alzheimer’s Association wants to hear from individuals across the nation who have been impacted by Alzheimer’s disease. We want to hear what YOU think should be in the national plan. We have one simple question:

What is the greatest challenge, frustration or concern you have about Alzheimer’s that you want the National Alzheimer’s Plan to address?

The National Alzheimer’s Project: From Act to Action is an effort to support a committed and effective implementation of NAPA. Information collected from individuals living with the disease, caregivers, researchers, providers and other stakeholders will be shared with HHS, which is responsible for creating the national strategy to overcome the Alzheimer’s crisis.

Throughout the summer we will be asking people to share their feedback on our website, www.alz.org/napa. In addition, we will be collecting pictures and videos to share with HHS as well.

With your invaluable input, we can make a difference to end Alzheimer’s.

Thank you,

Robert Egge
Vice President of Public Policy
Alzheimer’s Association

The Caregiver’s Voice received this eMail yesterday and I sent in comments about the need for greater focus on the front lines of family and professional caregivers, with knowledge, hope, and humor.

Be sure to copy and paste your comments in a document before submitting, if you wish to keep them for future reference, as there’s no way I could retrieve them after submitting.
Brenda Avadian, MA
Editor, TheCaregiversVoice.com